It's been way too long

I am so sorry to those 5 followers who read my blog. So dissappointing , I know.
It's not my life is worth bloggin about. Or is it ? Of course it is.

Much has happening since my last blog post in June.

Let's see Norah is now walking independently. July 26 she was in the kitchen and up she got from sitting and away she went.

This is at Lake Lisgar- Daycare summer party.

Our new front porch- Silver cross. less than $500 for the wood but they charged March of Dimes over $6,000 which did include the chair lift- $3000.

It means we can be outside on the porch with the dog. I call it our outdoor playpen. We still need an auto door opener.

                                                 I did the above photo for last day of daycare .

 Our trip to Southside park. Norah walked around for the first time.

A helping hand from Big Brother Owen.

Our newest health concern. We are going for an ultrasound October 18.

Watching the Olympics.

Dressed for church.

This was a day at the beach. Lake Whittaker.

Cutest Ballerina EVER ! Yep Norah's been wlaking for 5 weeks and is signed up for dance lessons.

 

We spent time at Ester Seals camp for our summer holidays. What a great time that was ! Will post a seperate post just on our days at camp.

great apps

Because we are desperate to win an ipad am linking this site so we can have 25 more chances on rafflecopter.   Check it out. http://www.smartappsforkids.com/2012/06/win-an-ipad-2-its-time-for-our-next-giveaway.html

Norah's first steps- 21 of them.

Finally figured out how to post a video. The lesson, must be saved as a video file not a movie maker project file. If you have been praying for Norah then you better just Praise the Lord after watching this.

and thanks for praying.

You betcha

I do admit I am a terrible blogger. But here I am blogging yet again.
Not sure if I have mentioned it here on my blog before or not, if you follow me on FB
you already are aware that we are in the process of adopting. Yep. US. Why you say ? I say why not .
I have been on this adoption journey a few times before and find myself here again. 3 times a charm right. I don't want to go into details about the match but will tell you that we are excited to be on the journey. We have finished our interviews for our homestudy and are in the home stretch. We have all the other paperwork to get done first. We are not in a rush to get it done. God's timing will be perfect. This girl has many medical issues, just like Norah so we have much to do and plan to have her here living with us. Much can happen between now and then. We had originally planned for a second child ever since Owen was born. When Owen was 3 we decided we had taken enough time to accomplish this and since it wasn't happening we contacted our local CAS and had a worker in house to discuss the process and get it started.At that time we were willing to accept a Sn child.  This was Christmas 2007. The worker tried to fast track us to get into the Pride Class so over the holidays we were to get the paperwork and application into her office the first week of Jan. Well the first week of Jan came and I had to call her to tell her that I was pregnant. I had Norah Sept 4 2008. She is Sn. The thing that has always stuck with me during those grief moments was this..... If you had seen her profile would you have come forward to adopt her....... You betcha is the answer. Hence why the tug to adopt this other little girl.

On the Norah front... I have video of her taking 21 steps on her own. I hope to post it below so please bear with me.

We have trialed a manual wheelchair called a supra. We need a few modifications to make it work for us and our vedor is working on our wish list. We have paperwork to get done to get our funding. Since we get ACSD it should be 100% covered.

School is only 90 days away. We have one more transition to school meeting happening June 19. Norah will be visiting the classroom 3 fridays this month for an hour each time. I know she will be fine as long as they listen to our notes and take the information to prepare the environment for her. Our goals are to be safe happy and healthy. My biggest fear is the communication. At daycare Norah is quiet- non verbal non vocal not active. At home she is a different child. Active, verbal- says a few words and sentences - like yeah, I do it ! Take it, I go . I am going to stop writing now as our OT and PT are going to be arriving for our bi weekly home therapy session and I still have to get dressed and wake the princess from her nap.

Photos for march and april 2012



This is Norah playing with a dandelion. more like eating it . LOL



Kids on the front lawn- We were trying to get Owen to hold her hand while she was standing but she was not ready this time.

This is Norah's first photo while she is standing/walking her Daddy and big brother. April 2012
                                                             This time she was ready.

Many Changes

I know not a very exciting title. Not very creative. too bad. That is all that I could come up with in short time between entertaining Norah and cooking dinner.

Kabuki test- neg
Doing other testing. CDLK 5 Pitt hopkins syndrome and another 4 letter one
We are also doing  a sn adoption. we are done pride and have more adoption training night.
also came acroos this website http://www.wonderbaby.org/articles/ipad-giveaway talk about great timing.
|I promise I will come back tomorrow to fill in some details.
i have 2 followers whoop whoop.

The journey continues

I admit, I am not a blogger. I have tried to write my own. I don't really have the time or committment. But I hope this will change after today.
I am going to try  to update this blog at least once a week.
I realize I love to share and what better way to do this than to blog.

The kabuki test came back neg. Dissapointed , absolutely. Moving on , yes.
We had a meeting with the developmental paed dr and he presented Norah to his students and other collegues and 2 new tests are going to get done. I am not sure what but moving ahead.

We went to a seating appointment a couple of weeks ago expecting that we were going to leave the building with a manual chair only to be knocked off my chiar by the suggestiong of a powerchair.

Yep, been doing powerchair training 3 weeks now. We have changed the joy stick to a toy dog and changed the direction to pulling it to go forward. Hopefully I can figure out how to post a video and /or photo. I did, yeah. This is called the magic carpet. It is a proto type thing designed to help clients (potential powerchair users ) gain experience driving a powerchair before it is ordered. It helps the OT/PT and technician figure out what is best for the client. - position of the joystick, the type of joystick, speed of the motor etc etc.
I know this blog is not as great as some of the other ones that I follow but I do hope it might give you - the reader- an insight into my life with Norah and how amazing she is. I also hope that it gives you hope, helps you believe so that you can dream a dream so big .