Norah

Norah
smiling girl sits on grass

Tuesday, October 1, 2013

Sometimes......

Wow ! It has been a year since I last blogged. Bad me.
Sometimes life gets in the way.

Quick recap- still waiting for an adoption placement. It takes forever you know. Patience is tested on this adoption journey at every step. Workers go on vacation and you wait for replies. Communication is difficult.
We had a match , and had been doing transition visits but then we stopped and did not move forward.

Now we are back to another match and waiting for information sharing. We hope to have a visit planned sometime in the future. GOD will make a way when there seems to be no way.

Kids are happily back at school. Summer was not fun. We promoted Granna to Glory after her short fight with cancer on July 15. It was a difficult few months travelling back and forth to the hospital and moving her from nursing home to another nursing home. We didn't do anything marvelous for our holidays. George lost his job Aug 29 but has since returned to a new one. PTL.

Norah had been doing so well with having no g tube feeds since June 9. She was only being fed at school and has been eating some foods regularly. She was doing amazing with drinking from her straw until a few Thursdays ago when she woke up crying and not wanting to eat/drink. Off to ER. A chest x ray showed pneumonia, only after the radiologist confirmed it at my request. Norah was on antibiotics for 10 days. I was hoping it was a germ and not aspiration. I contacted our OT at the hospital and we got in for an emergency swallow test. Norah failed. She aspirated using a straw so its back to g tube feeds. When I pulled out her Joey machine she gave it a HUG. I was a crying  babbling fool. I was crying more this moment than at any other time in her life. I learned a good lesson from her during that moment. She is always full of JOY, her circumstances NEVER defines her. My biggest concern is her lack of being able to communicate, especially when it comes to health issues.
She has a supertalker now so we are learning to use it. She is a pro at home but she fails out in public. We have to work on it at school as well.
 Norah in her new ballet costume. Yep she's a dancer.
Family photo shoot - Nov 2012. I was prompted by the Holy Spirit to have Winnie included. I t was a very cold day and she could barely walk because at the time her hip was bothering her.
Photo credit @Lisa Neutel :)

 

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